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Real members of MyPsoriasisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyPsoriasisTeam Member asked a question 💭
Eastcoast

... do U think we should have the freedom to control our own health?

July 4, 2025
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Answer Summary

Members discussed the importance of having the freedom to control your own health, especially when living with conditions like psoriatic... Read more

Members discussed the importance of having the freedom to control your own health, especially when living with conditions like psoriatic arthritis, with many agreeing that self-advocacy is essential to good care. Several members shared experiences of pushing back against doctors who dismissed their concerns, including one who tore up a prescription and found a new provider after being ignored about medication side effects. A recurring theme was that patients know their own bodies best and being actively involved in managing your condition, asking questions, and speaking up leads to better outcomes.

A MyPsoriasisTeam Member

When I first got diagnosed with PSA I learned very quickly it's important to be actively involved in management of your condition. You know your body better than anybody else you know how it's responding or reacting to things. You know if you feel as you should or not better than anybody could tell you. It's important I feel too relay these things to your caretaker for this condition. It's important to be actively involved in finding out what's all a side effect of anything you're prescribed and to question things.

July 4, 2025
A MyPsoriasisTeam Member

I have different reactions to medicines than other people or what is supposed to be "side effects." What doesn't happen to someone happens to me. I can't take methotrexate, first off it doesn't work on me and second it changes my personality. When I told a new doctor that she poo poo'd me and was going to prescribe it anyway. I tore up the script and then found another provider who'd listen to my concerns.

I've been to a few different rheumatologists due to my insurance changing or the provider opts out of my current insurance. It's been difficult to find any in my area that'll take my insurance and who are close by.

July 8, 2025
MyPsoriasisTeam

Question: How can I take control of my psoriasis management while working with healthcare providers?

Taking an active role in managing psoriasis is empowering and important. Members of MyPsoriasisTeam have found success by:

- Keeping symptom diaries to track triggers and flares
- Speaking up when treatments aren't working Show Full Answer

Question: How can I take control of my psoriasis management while working with healthcare providers?

Taking an active role in managing psoriasis is empowering and important. Members of MyPsoriasisTeam have found success by:

- Keeping symptom diaries to track triggers and flares
- Speaking up when treatments aren't working
- Trusting their instincts about their body's needs
- Having open discussions with their healthcare team While some aspects of psoriasis are beyond our control, you can take charge by:

- Following your prescribed treatment plan
- Avoiding known triggers
- Making lifestyle modifications that work for you
- Seeking support when needed
- Practicing stress management techniques

Remember that managing psoriasis is a partnership between you and your healthcare providers. Trust your experiences while remaining open to medical guidance.

July 4, 2025
A MyPsoriasisTeam Member
July 14, 2025
A MyPsoriasisTeam Member

Yes.... it's an interesting relationship that we sometimes have. Kelley4, did U get my recent post on the patient/physician relationship I found on Google?

July 13, 2025

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