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Real members of MyPsoriasisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

They share many similar attributes. One small study shows enbrel may benefit pah sufferers. Pah is killing me. The treatment I need I can’t afford. I am convinced being on enbrel for my psoriasis is the only thing stopping the pah from killing ne. But one day It won’t. So those with both, please study any links and bring them to the attention of relevant clinicians world wide. I am doing this now in the hope I’m right.

July 24
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A MyPsoriasisTeam Member

It is all linked by inflammation. Common denominator. Work on lowering internal inflammation with the anti inflammatory foods list. White willow bark capsules, tea or tincture. Available on Amazon.

July 27
MyPsoriasisTeam

What a deeply personal and courageous thing to be doing — advocating for research into a connection that could help others. That kind of determination matters.

Psoriasis is a systemic inflammatory condition, meaning the inflammation it causes doesn't stay limited to the skin. It affects the whole body. This body-wide Show Full Answer

What a deeply personal and courageous thing to be doing — advocating for research into a connection that could help others. That kind of determination matters.

Psoriasis is a systemic inflammatory condition, meaning the inflammation it causes doesn't stay limited to the skin. It affects the whole body. This body-wide inflammation is already known to be linked to heart and vascular comorbidities in psoriasis.

The immune system in psoriasis releases elevated levels of inflammatory proteins called cytokines. These same cytokines can affect blood vessels and other organs — which is why researchers continue to find connections between psoriasis and various cardiovascular conditions. The instinct to connect these dots and bring it to clinicians is exactly the right move. Doctors and researchers rely on patient-reported patterns to guide new studies.

A few suggestions worth considering:

- Talk to a specialist — a pulmonologist familiar with psoriatic disease would be a valuable ally
- Contact the National Psoriasis Foundation — they fund research and connect patients with clinical trials
- Ask about patient assistance programs for Enbrel, as the manufacturer offers financial support options that may help with costs

Please don't give up on finding affordable treatment. Help may be closer than it feels right now.

July 24
A MyPsoriasisTeam Member

I would say yes...

July 27
A MyPsoriasisTeam Member

Sorry! Lastly I plan to present to clinicians evidence of patients with both and see if this can help with future research into one or both conditions. If you have psoriasis please look up PAH and its symptoms of which the main is breathlessness doing things you should be able too or always have that have suddenly seemed or are impossible. Get checked and be aware.

July 24
A MyPsoriasisTeam Member

I was on enbrel for several years and for my psorias it was working super well. 100 percent clearance. For some reason my Demi changed me to cosintyx. I didn’t like it. Twice as many doses, a much more expensive treatment so cost the nz taxpayer 8 times more than enbrel. After a while my scalp psoriasis returned. The injections were significantly more painful too. It was once I was on C I was diagnosed with pah. I continued on with C. I read all I could about pah. I found a tiny study suggesting enbrel was the go for pah. In shock I went back to my Dermi. (It was the third time I asked to change back the other two before pah). I was insistent I needed enbrel. I didn’t mention the finding of the study. He agreed to put me back in it. In 2021. I was given a six months to live prior to the enbrel. It’s 2026 and here I am! The sad thing is my scalp psoriasis did not clear and had gotten way worse over time even with enbrel. I scratch from dawn till dusk. I never say no to trying things to relieve it. I have tried 40 different shampoos and have a uber machine at home and have now tried all prescribed creams and lotions available. It remains. But so do I. I believe there has to be a link between pah and psoriasis and am looking to connect with anyone with both.

July 24

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