Feel free to share what helped, what didn’t, and anything you wish you’d known earlier. Your experience could really help someone else here 💙
This could include medications, lifestyle changes, home remedies, or alternative therapies. Everyone’s journey is different, and hearing real experiences can be so helpful. Share as much or as little as you’re comfortable with. #TreatmentJourney
Answer Summary
Members responding to the treatment journey question shared a wide range of experiences with both medications and lifestyle approaches for... Read more
I have psoriasis on my scalp and use Clobetasol for 1 week to ease the itching, 1 week off. It usually starts itching on day 4 though. I shampoo with Ketoconazole. or Tar Shampoo to help loosen the scales. I have had to cut my hair short to be able to manage it somewhat. It is a lot better than it started out. I do not wish to take the biologics, so I just live with it.
For me, Skyrizi has been a miracle drug. It does cost me $2000 a year, but
I have been nearly totally clear for the past year and a half.
Hi There! I was in denial about having Psoriasis and tried for almost 8 years to manage it on my own and it got so bad i was in so much pain and i eventually quit my job because i was so embarrassed about my plaques and scales and was in so much pain when i woke up or would sit for long at a desk, typing was horrible for my fingers. With that said i finally caved and went to a dermatologist, officially got diagnosed with Psoriasis and PsA (which i already knew, it runs in my family with my brother, my mom and a cousin having it and all are on Cosentyx successfully, my Derm won’t consider it for some reason?) and she put my on Otezla, never worked made me so sick, from not working i lost my insurance went cold turkey with nothing but coconut oil and over the counter bs and suffered again and it got even worse, i was MEGA depressed i really felt like throwing in the towel until i got new insurance. Which my wonderful fiancé pays for! Was put on Tremfya and some topicals did good for about 5/6 months and then it stopped working, started coming back with a vengeance, switched to Bimzelx and now even after celebrating a year of being on it i’m pretty much completely clear ( it did at my worst cover my entire scalp, i lost so much hair, down my neck, my face, eyebrows, forehead, elbows, knees, feet, in my ears, behind my ears, corners of my eyes, in my nose, random patches, inverse on my buttcrack under my breasts & bellybutton). I still have random inverse flair ups that i use Zoryve for (non steroid) and it works great as well! Only problem with Bimzelx is that i get little sick feeling about a week or so before my next shot, which my Derm said isn’t normal, i get yeast now, under the breast & armpits which i have been able to treat at home with an over the counter anti fungal wash and cream, and also i randomly will get folliculitis and it’s so painful and leaves scars and that’s another side effect of the Bimzelx, my Derm gave me Clindamycin Phosphate Lotion and it’s helped so far. Was on Clobetasol Propionate foam and cream and it was horrible on my hair, and it’s a heavy steroid so i switched to Triamcinolone Acetonide Ointment for harder to treat patches but only until the patch is gone and no longer than absolutely needed but it works! I also get routine lab work done every 3 months, to test for the usual TB and such. Only problem now is that my insurance won’t cover the Bimzelx or the Zoryve and my Dermatologist is wonderful and has been giving me samples this whole time and now wants me to switch to Icotyde, which is very new and is a pill, and i don’t want to take a pill every day, but i might have to, it’s just scary because i don’t see any body actually on icotyde so it freaks me out! Anyone out there on it?! Would love some feedback!! Hope this all helps somebody!! And stay strong out there! Maybe one day they will find a cure but i doubt it with how much $ they are making on all of us!! Sending love to those struggling!
I tried every topical, including the newer ones, over the last twenty years - nothing worked. Also bought a light booth. That helped a little. Finally tried Taltz a year and a half ago. It cleared my skin in a matter of weeks - a miracle - and I have stayed clear. Wish I had started it much earlier.
Dovonex, I rejected as Mahonia Aquifolium as effective does not cause skin damage used long term. Best answer a vegan wholefoods or near vegan diet avoiding processed food,make sure iodine requirements are covered. Psoriasis began for me at 28 now 83 small patch on my back does not itch. Psoriasis notorious for never going completely. I did rid myself of it completely for a period resident for several months at high altitude between tropics in the city of Arequipa, drinking Salus local mineral water may have also helped. Psoriasis is locked into the matrix of the individual not a surprise I have now to deal with thyroid issue often linked with Psoriasis. Be careful with seaweed for iodine even nori can be too variable in iodine content for pituitary axis issues,otherwise acceptable for vegans.